Simon had his doctor’s appointment today and it seems that he will be having some test done next Wed. The Dr. (who is great and doesn’t just nod his head when we tell him Simon’s symptoms) is trying to narrow down what Simon has, or doesn’t have. He will be doing a colonoscopy and endoscopy on him on Wed. Tomorrow Simon will begin taking a powder in the evening to prepare his body for the big Tuesday cleanse. On Tuesday at 2pm he starts taking the 30+ pills he needs to consume by that evening. By Wed. morning he will be cleaned out and in the hospital. The tests will be done and we will know definitively if he has Crones, Celiac or just a bad tummy. The Dr told him he can start eating gluten again, and that he really doesn’t think he has Celiac’s at all. Tonight Simon and I both broke our gluten fast at Firehouse Subs……truly awesome. I haven’t gotten sick yet from my dinner and it’s been over 4 hours, YEA!
I too will be having some poking and prodding coming up, can’t wait. I just want to feel better, I can’t remember the last night I felt great.
Simon has not been feeling well for quite awhile. We thought that giving up Gluten was the key, but apparently not. I took him to the Dr. last week after a month of severe stomach aches, fatigue, weight loss and more. The doctor thought that it might be allergies and prescribes Nasanex….I kid you not. His blood tests back with a very low iron level and he’s been diagnosed with anemia. Tomorrow we are going to a pediatric gastroenterologist and are hoping for some real answers. I am tired of looking at my sick kid, his skin color is very pale and he has no energy. Those of you who know Simon know that he is a very upbeat kid, even that has changed. Poor kid snaps at people and has very little patience. There is nothing worse than seeing your child double up in pain, I hate this and want it to STOP!!!! Tomorrow we will have answers, and if not, I am not leaving the Dr’s office!
Our Utah friends are here and we are having a great time. Sunday we hung out by the pool and had a cookout. That night the girls went to see Mamma Mia, great show. Monday they took the kids to Sea World and I went to school. Yesterday we all went to the beach and swam in the water, great weather, until the rain came. Last night we went to Dark Knight, Health Ledger rocked it. Today Cindy and Sue took the kids to Universal Studio and I again went to school and worked on my research paper. The paper is due tomorrow and I can’t wait to hand it in. I am currently waiting for Tommy to get home from night class to give it a once over. Tomorrow they are headed back to Universal and I am taking Si to the Dr’s. I am not sure what we are doing on Friday, maybe the beach again.
Have I ever told you that my sister in law Katie has a special younger sister? Kristie is blind and mentally challenged, but this doesn’t stop her from doing anything. She can ride a city bus by herself to the movies and make it back home! She the sweetest girl and Tommy loved watching her read Harry Potter in Braille. She loves Darth Vader, chocolate and her niece Calla. On Thursday she received a kidney from her mother. Both are healing and are looking forward to many wonderful years together. In my opinion people use the term hero too often these days. To me a real hero is a mother who is willing to risk her own life to save her daughter’s life. Cheers to you Julie, you are my hero! xoxo
My research paper is taking over my life; it’s all I can think about. Well…. almost all I can think about.
I wonder when we’ll see Brad Pitt’s twins. Will my house be clean….ever? What are we having for dinner? The fact that Simon has requested food (at band camp) and I am now thinking about what to take for him. Why I don’t have a tan. Why I was still awake at 2:30 last night watching MTV’s best dance crew crap. When will I get a nap? Is Netflix coming???? Why is my new grass being attacked by some funky mold, uggggg. How fat is Tommy’s face going to be today??
Okay, I need to focus, get this stupid paper written and enjoy my last two weeks of school. This is me now focusing, can you tell?? I am now focused on the fact that the new Twilight book comes out in Aug. and the fact that I will be out of school and will have time to read it. I am now thinking about how Tommy leaves a month from today, I am now done thinking about that.
Gluten Free Pasta Salad
1 pkg Tinkiyada pasta, cooked
2 cans “good” tuna
Chopped celery, onions, cucumber, red pepper
Cilantro
Peas
Hellman’s Mayo
Mix together and add salt and pepper, enjoy!
This research paper is killing me. I love the writing part, but the research and documentation is a pain in the butt. I’ve spent days researching the pros and cons of open adoption and now feel like I am a semi expert. Tonight I started writing the paper and have completed the opening paragraph, thesis statement and two additional paragraphs. WHEW! I have a lot more work to do this weekend.
Simon has really enjoyed sax camp this week and can’t wait for us to come see and listen to his concert. Julia is going with us and she is looking forward to seeing him as much as we are.
Tommy is doing good, his face is really swollen and sore. He took a shower today and had a few friends over to play video games. He is still using the ice packs on his face. He is planning on going to work tomorrow, we will see how that goes.
Olivia had a friend from school come over today and get this, her name is………………….Kristina Richardson. OMG isn’t that the most bizarre thing ever??? We teased her all day and reminded her that Liv’s dad married a Christina Richardson. I took the girls to see Get Smart and we all enjoyed it.
You can tell that it’s getting closer to the time when Tommy will leave for college; he had his wisdom teeth out this morning. He did great and only bit the dental tech once, she was not pleased. She said he would not shut up and they finally had to force him to quit talking so they could begin the surgery. After the surgery I helped get him in the car and off we went to Tropical Smoothie. Tommy insisted on calling all of his friends, letting them know he had made it out alive. We only had one minor wrestling match in the car before I took control of the phone….so funny. He wanted to go in to get a smoothie and I had to help him cross the parking lot, he was acting like he had the mental capacity of a 3 year old. Once inside the shop he sat down and tried to sleep, coincidentally his girlfriend’s mother was in the shop at the same time and Tommy couldn’t figure out why she was there. He was hugging strangers in the store and wanted to give Eric, the worker a hug too. I wrestled him out of the store and across the parking lot, where once again he tried to hug strangers. He is now home and knocked out. I fed him some pudding and have been giving him drugs on a regular basis. He slept with his head on my lap like he did when he was a kid.
I am writing my research paper on the need for open adoptions. If you or anyone you know would be willing to talk to me about this subject, please let me know. I personally feel that open adoptions are the way to go and can prevent so many problems that adoptees go through. I’ve been doing research and am getting ready to write the paper, but would love to speak to some people. As an adopted person I will know that some people worry about their personal information getting out, and I know that adoption and surrendering of a child can be a painful process. I will respect your privacy. You can contact me through the comment section and I can talk to you either on the phone or through emails.
Our friend Dave was here from Chicago this weekend and so of course we had to show him a good time. Tom and the boys + girlfriends, (Dave approves of both of them) took him to a comedy show, which they all enjoyed. Yesterday we threw a large pool party in honor of Dave. We invited two families that worked with him in Utah, plus the in-laws, and fellow coworkers of Tom. We went through 20+ pounds of wings, fruit salad, potato salad, gluten free brownies, fruity pebble treats, avocado dip and 7 layer dip. The party started at noon and the last people left at 10:30. For the first time in Carbone history we ran out of food! We ended up needing more wings, Dave was craving more at 7 pm, so Tommy went to the store. We played pool volleyball for hours and by the end of the night my voice was shot. I am wiped out, what a fun day. I wish that his wife and kids could have been with him, but it was a business trip. Hopefully one day soon they will make it down here.
I am having a difficult time getting back into the swing of things post vacation; I have been very tired and lethargic. I think that it could be from ingesting trace amounts of gluten on the trip. We ate out numerous times each day and all three of us gluten haters had a difficult time with our tummies. I took Simon to the Dr yesterday and he is now in the 15% of height at 5′4 and is maintaining a strong 3% in weight at just less than 100 pounds. The Dr was pleased with his progress and is hoping he will grow another 4.5 inches this next year. Since last April he has grown 4.5 inches and gained 9 pounds.
School is going good and I am getting ready to pick my classes for next semester. I am trying to decide if I am going to take 3 or 4 classes. I will be very busy this fall with PTSA, school and worrying about Tommy being gone. We also received some bad news a few weeks ago, Tom’s older brother Joey has been diagnosed with Hodgkin’s Lymphoma and started chemo this week. We are all very concerned but are keeping a positive attitude. I am planning to hang with Joey each Friday and am looking forward to planning fun things for us to do together. Each week we will have a mini adventure, even if it means sitting on his boat and him watching me do some sort of stand up routine. Laughter is the best medicine, and I am going to keep him laughing. Keep him in your prayers, he is my bestest friend next to my husband.
